Promoting Awareness of RSD/CRPS in Canada (PARC)
|Record #: NIA5696||Last Modified: 20 Sep 2018||Last Full Update: 20 Sep 2018|
|Public Comments||Alternate email firstname.lastname@example.org|
|Office Phone||Office Help Line 905-934-0261|
|Primary Contact||Helen Small, Executive Director|
|Alternate Contact||Sharon Shore, Board Member; Email: email@example.com|
|Alternate Executive||Willy Noiles, Board Member; Email: firstname.lastname@example.org|
|Boundaries||Support Group: Niagara Region
|Located In Community||St Catharines|
|Mailing Address||PO Box 20032
St Catharines, ON L2M 7W7
|Service and Access Details|
|Description (Service)||Provides information and education about Complex Regional Pain Syndrome(formerly known as Reflex Sympathetic Dystrophy) * offers support to individuals living with CRPS/RSD, their families and friends * PARC is a member of the International CRPS Recovery Study research team studying patients in 8 countries. PARC is a member of IRC, International Research Consortium.
◾ information and education
◾ support group
◾ self-management program which teaches patients to manage their illness and problem solve daily issues in a positive manner
◾ recommends health care professionals who treat and manage CRPS/RSD.
◾ raises public awareness
◾ raises funds for CRPS research in Canada; currently raising funds for Montreal Research;please see our "Canadian Research" page on website
|Hours||Help Line Mon-Thu 7 pm-10 pm or leave detailed message|
|Eligibility||Ages: 18 year(s) and up
Those living with CRPS/RSD, their families and friends. Offers support and information to patients, doctors and health care professionals.
|Application||Apply through Contact Form on Website * www.rsdcanada.org/parc/english/parc/contactus.php|
|Languages||English - Website, Programs ; French - Publications|
|Fees||Membership ; Deluxe Membership fee $35/yr includes triannual newsletter, Survivor Club, ALERTS, DVD set member discount, Self Management Program for CRPS (free call) and PARC Forum. Optional newsletter for only $25/year. Memberships are tax deductible.|
|Physical Access||Fully Accessible - support group meeting room|
|Legal Status||(50) Non Profit|
|Funding||Donations ; Memberships are tax deductible. Donations are fully tax deductible. If requested, a card will be sent to the honoree or person in whose name the donation was made The donor will receive the receipt and acknowledgment by mail. Donations help with sending packages to patients, maintaining the HELP LINE and website. Donations help contribute to funding events.|
|Meetings||The support group is for anyone with chronic pain and CRPS. Call for details and to ensure the meeting is on.|
|Service Categories||Disability Associations ~ Reflex Sympathetic Dystrophy ; Disease/Disability Information ~ Reflex Sympathetic Dystrophy ; Health/Disability Related Support Groups ~ Reflex Sympathetic Dystrophy|
|Resources||Flyer, digital CRPS articles, triannual newsletter, PARC POCKET CARD (wallet card), Stained Glass Art Cards,Living a Life in Pain (DVD, Forum.|
|Events||Fall event during National Pain Awareness Week, first week in November, in St Catharines. Please monitor this link:
Yearly support group events.