Promoting Awareness of RSD/CRPS in Canada (PARC)
|Record #: NIA5696||Last Modified: 26 Oct 2018||Last Full Update: 20 Sep 2018|
|Public Comments||Alternate email firstname.lastname@example.org|
|Office Phone||Office Help Line 905-934-0261|
|Primary Contact||Helen Small, Executive Director; Phone: 905-934-0261|
|Alternate Contact||Jean Pamenter, Board Member; Phone: 416-498-7622; Email: email@example.com|
|Alternate Executive||Willy Noiles, Board Member; Email: firstname.lastname@example.org|
|Boundaries||Support Group: Niagara Region
|Located In Community||St Catharines|
|Mailing Address||c/o PARC
PO Box 20032
St Catharines, ON L2M 7W7
|Service and Access Details|
|Description (Service)||Provides information and education about Complex Regional Pain Syndrome(formerly known as Reflex Sympathetic Dystrophy) * offers support to individuals living with CRPS/RSD, their families and friends * PARC is a member of the International CRPS Recovery Study research team studying patients in 8 countries.
◾ information and education on CRPS
◾ support groups
◾ self-management program which teaches patients to manage their illness and problem solve daily issues in a positive manner
◾ recommends health care professionals who treat and manage CRPS/RSD.
◾ raises public awareness of early recognition and diagnosis of CRPS
◾ raises funds for CRPS research in Canada; currently raising funds for Montreal Research
|Hours||Help Line Mon-Thu 7 pm-10 pm or leave detailed message|
|Eligibility||Ages: 18 year(s) and up
Those living with CRPS/RSD, their families and friends. Offers support and information to patients, doctors and health care professionals. PARC helps parents of children with CRPS.
|Application||Apply through Contact Form on Website * www.rsdcanada.org/parc/english/parc/contactus.php|
|Languages||English - Website, Programs ; French - Publications|
|Fees||Membership ; Deluxe Membership fee $35/yr includes triannual newsletter, Survivor Club, ALERTS, Self Management Program for CRPS (free call) and PARC Forum. Optional newsletter for only $25/year. All mmberships are tax deductible.|
|Physical Access||Fully Accessible - support group meeting room|
|Legal Status||(50) Non Profit|
|Funding||Donations ; Memberships are tax deductible. Donations are fully tax deductible. If requested, a card will be sent to the honoree or person in whose name the donation was made The donor will receive the receipt and acknowledgment by mail.
Donations help with sending packages to patients, maintaining the HELP LINE and website. Donations help contribute to funding events.
|Meetings||The support group are for anyone with chronic pain and CRPS. Call for details and to ensure the meeting is on.|
|Service Categories||Disease/Disability Information ~ Reflex Sympathetic Dystrophy ; Health/Disability Related Support Groups ~ Reflex Sympathetic Dystrophy ; Pain Management ~ Reflex Sympathetic Dystrophy|
|Print Material||e.g. Printed material, HELP LINE, website,newsletters.|
|Events||Fall event during National Pain Awareness Week, first week in November, in St Catharines. Visit website for other yearly events.|